Helpful Website Resources
Please note that Healthcare Liaison does not receive compensation for referral to any resources nor do we accept paid advertising. Our Advocacy Partners follow the same standards.
For Families and Children
This site is sponsored by the Nemours Foundation. It has a separate section for parents and is set up nicely. www.kidshealth.org
Comprehensive news and information. www.webmd.com
Site sponsored by the American Academy of Family Physicians and addresses the whole family. www.familydoctor.org
A great support system for parents. www.P2PUSA.org
Has listings in every state. Offers entertainment, education, and family activities for seriously ill children. www.starlight.org
American Academy of Pediatrics web site. www.aap.org
Very interesting site. Letters that other parents have written about their own experiences with their sick children. Also offers basic information on different disease processes. www.aparentsletter.com
A website sponsored by the National Institute of Health and explains clinical research to children and families. www.nhllbi.nih.gov/childrenandclinicalstudies/index.php
Also from the American Academy of Pediatrics. Lists topics related to children as well as possible treatments for conditions. www.healthychildren.org
Resource for health professionals and families interested in creating a medical home for children. www.medicalhomeinfo.org
Patient Advocate Foundation. Has a comprehensive list of pediatric resources for parents of children diagnosed with life-threatening illnesses. www.patientadvocate.org
National Children’s Cancer Society. Helps children with cancer and their families by providing financial assistance, advocacy, education and emotional support. www.children-cancer.com
Chai Lifeline. Resources for seriously ill children and their families, including programs, family retreats, insurance support service, wish granting, sibling support. www.chailifeline.org
UnitedHealthcare Childrens Foundation. Financial assistance for families with ill children, including funding medically necessary services when there is a gap in the commercial health benefit plan coverage. www.uhccf.org
Assisted Living and Nursing Homes
Advocacy, legal referrals, Medicare information, facility-specific information. www.canhr.org
Cancer
Types of cancer, clinical trails, drug protocols, sites for treatment of cancers: www.cancer.gov
Risk, diagnosis and treatment information. www.breastcancer.org
American Cancer Society. www.cancer.org
Diabetes
Guide to diabetes care and research. www.diabetes.niddk.nih.gov
Nutrition information, prevention, treatments. www.diabetes.org
Drug Information
Pill identification, side effects and drug interactions. www.drugs.com
Information on drugs, drug interactions, usage, side effects. Includes information on mineral and vitamin supplements. www.nlm.nih.gov/medlineplus/druginformation.html
Research on medications and drug safety. www.fda.gov/cder
Healthcare Information
Symptom decision trees, self care information. www.familydoctor.org
Hospital success rates by diagnosis and surgery. www.hospitalcompare.hhs.gov
Heart Disease and Stroke
American Heart Association. www.americanheart.org
Symptoms, diagnosis and treatment. www.nhlbi.nih.gov
Joanna Smith LCSW, MPH, CHA
CEO of Healthcare Liaison, Inc. She has 30 years experience in the fields of health, public health and mental health in healthcare systems throughout the San Francisco Bay Area.
Healthcare Liaison Up Close
The Roles of Private Patient Advocates
7 minute audio podcast
modernhealthcare.com
Jan. 2011
Six Ways to Use Communication for Good Patient Transitions
by Joanna Smith
Curaspan Health Group
Sept. 2010
Advocates In the News
When Health System Fails You, Advocates Can Help
When Bob Whitlow, a long-time paraplegic, faced a
recent health crisis, he hired a private health advocate
to help.
The Wall Street Journal MarketWatch
May 2011
(04m:03s video)
Press Releases
Healthcare Liaison, Inc. Expands Credentialing Program For Healthcare Advocates
Berkeley, CA
June 15, 2010
(57K PDF file)